Blog with us!

The National Center for Disability, Equity, and Intersectionality invites you to blog (or vlog) with us!

General Submission Guidelines

We are looking for submissions about disability justice, healthcare, and community living inequities faced by people with disabilities and proposed solutions to make the services within these systems more equitable. We want posts that will educate, inform, empower, and challenge people to think in new ways.

We are open for submissions year-round.

Guest blog posts are usually between 500 and 1,000 words. Please include a short bio and a photograph with your submission.

The National Center for Disability, Equity, and Intersectionality team may work with you to edit your blog. Our publication schedule varies. Please allow at least one week between submission and proposed publication date.

Authors and photographers have rights. Please credit others' work in your submission and cite our blog if you republish. 

Following publication, we will share your blog post via Facebook, Twitter, and our newsletter.

Accessibility

We are committed to accessibility. Please use alt-text and captions for images. Do your best to write in plain-language. We will only post videos that are captioned.

How to Submit

Send your 500-to-1,000 word posts with a suggested title to leah.smith@cchmc.org. Include a brief bio, picture with image description, and social media accounts that you’d like to share. For examples on other blogs we have posted, click here.

Blog Index

Cripping Mentorship in Academia
Introduction to Disability Justice
Reflecting on a Season of Impact and Looking Ahead: Our Journey at The National Center for Disability, Equity, and Intersectionality
Update on ADA Supreme Court Case: Acheson v. Laufer
988 Suicide & Crisis Lifeline Adds American Sign Language
Disability Activists Closely Watch SCOTUS Case
Intersectionality 2.0: Growing in Our Thinking and Philosophy of Care
Lawyers, Mental Health, and the Character and Fitness Investigation
Accessibility: The Questions I’m learning to Ask
To Disclose or Not to Disclose: Online Dating, Disability, Creating Your Online Profile with Confidence
The Intersection of Ableism and Racism in Healthcare
The Intersection of Driving, Disability, and Being Black
Time Lost to Disability Management is a Health Inequity
The Paradoxical Perspective on Paxlovid
An Attempt at Reparations: California’s Forced or Involuntary Sterilization Program
To Better Understand Intersectionality and Health Justice, Look to the Experiences of People Living with HIV
Why Intersectionality is an Essential Part of Public Health
Language Access Services to Eliminate Health Disparities and Achieve Health Equity for those with Limited English Proficiency (LEP)
In Response to the Reversal of Roe v. Wade and Its Impact on People with Disabilities

Cripping Mentorship in Academia

Cripping Mentorship in Academia Word cloud in the shape of a lightbulb. Words include: academia, crip, mentorship, mental health, embrace accessibility

At the university, where productivity often takes precedence and expectations align with non-disabled norms, it becomes imperative to consciously disrupt these paradigms. As a faculty member and undergraduate students in a critical disability studies program, we are committed to fostering inclusive mentorship relationships and we have embarked on a journey to “crip” our mentorship dynamics.  

The term ‘crip,’ once used derogatorily, has undergone a transformative reclamation by some people with disabilities. It has evolved to be more than just a noun; ‘crip’ has become a verb, a form of practice that involves questioning norms and innovatively creating spaces for new ways of thinking and doing. This transformation extends into the realm of mentorship. As a dynamic practice, ‘crip’ mentorship challenges traditional models and introduces novel approaches to fostering relationships and facilitating growth. It represents a shift in perspective, embracing disability not as a limitation but as a unique lens through which mentorship can be re-envisioned and revitalized.

Cripping, in this context, goes beyond a conventional understanding of disability; it encapsulates the broader notion of questioning and dismantling ableism, advocating for inclusivity, and embracing representation. By cripping mentorship, we celebrate diversity as an inherent strength to be learned from and integrated into the transformative practices that reshape the future. Our commitment to crip mentorship is not merely a theoretical stance but a lived experience, a daily practice that aims to redesign what mentorship can look like.

By acknowledging and respecting each other’s capacity and needs on a human level, we ensure consistent, intentional efforts to provide reciprocal flexibility and accessibility. This understanding and genuine care disrupts the prevailing power dynamic that persists between professor/student, mentor/mentee in a way that creates space for us to learn, succeed, and challenge ourselves with mutual support. With consideration for each other’s unique ways of communicating, learning, and teaching, we feel appreciated and truly heard in an academic world that can be unwelcoming and unyielding.

In this reflective piece, we aim to share some tangible strategies and insights derived from our ongoing efforts to crip mentorship, offering guidance to both students and faculty members who are eager to embark on a similar mission. By disrupting the neoliberal processes that prioritize productivity, we hope to promote a more compassionate and inclusive academic environment. Next, we provide a few tips for faculty and students on how mentorship relationships can serve as transformative spaces. 

Prioritize Flexibility Over Rigidity

One of the fundamental principles of crip mentorship is acknowledging how rigid academic structures inadvertently marginalize faculty and students with disabilities. Recognizing this, a shift towards prioritizing flexibility becomes essential. This flexibility might manifest in various forms such as adjusting deadlines, modifying project formats, or adopting alternative assessment methods that are able to better accommodate the diverse ways individuals interact with academic material.

Students with disabilities often have additional responsibilities, such as caretaking for others, medical appointments, or other health-related commitments, which can lead to burnout. Offering flexibility is vital for both mentees and mentors to recharge from the demanding pace of academia. Regular check-ins, for example, are instrumental in evaluating if aspects of a project need to be restructured or if deadlines require renegotiation. Moreover, in scenarios where a student misses an in-person assignment due to medical reasons, providing an alternative assignment with equivalent learning outcomes supports, rather than penalizes, the student. This approach helps maintain a constructive and adaptive mentorship environment.

Open Communication

Effective mentorship is fundamentally grounded in open and honest communication. Within the context of crip mentorship, this translates into creating a space where students can comfortably express their needs, preferences, and challenges. It is essential for faculty members to mirror this openness, sharing their own experiences and being receptive to adapting their mentorship strategies to meet the diverse needs of their mentees. The foundation of a successful mentor-mentee relationship is built on this mutual disclosure.

Mentors, with the best of intentions, can sometimes offer more opportunities than students are capable of managing. Part of responsible mentorship involves supporting students in assessing their workload and declining opportunities without fear of judgment or assumptions about their abilities. In allowing a student to evaluate their circumstance and communicate their workload they are building skills for future jobs environments to wager what is an appropriate amount of work to take on. This approach underscores the importance of transparency and trust in the mentorship relationship.

The essence of mentorship also relies on creating a safe space for vulnerability. As students, we deeply value the openness of our mentor regarding his experiences with invisible disabilities. Our mentor’s honesty about the challenges he faces, coupled with the unique perspectives and commitment he brings to his work and mentorship, sets a powerful example. Open discussions about the best methods of correspondence, be it through email, Zoom, or in-person meetings, further enhance the effectiveness and inclusivity of the mentorship experience. Accommodating virtual meetings or allowing for asynchronous communication upholds the value of crip mentorship and ensures that all students have equitable access to educational opportunities.

Embrace Accessibility Practices

Crip mentorship inherently demands a steadfast commitment to accessibility. Faculty members can uphold this commitment by ensuring all learning materials, communication platforms, and physical spaces are fully accessible to students with disabilities.  Not only can they advocate for accessible practices, but actively implement strategies ranging from providing captioned videos and using easily readable fonts to offering transcripts for audio content, all aimed at creating an inclusive learning environment. One approach to ensure accessibility in the classroom is one our mentor has taught us students. At the beginning of each semester in the first class he provides an accessibility statement which provides an outline of how the classroom can be used in a more inclusive way. This statement allows students to move freely around the room and take breaks when needed.

When mentoring students who have specific disability accommodations, it is crucial to integrate these accommodations into the mentorship process. This includes adjusting meeting dynamics, project deadlines, and the overall expectations of the mentorship relationship to align with the student’s needs. For instance, if a student has accommodations for extended deadlines due to medical flare-ups, it is important to adapt project timelines accordingly. Verbally acknowledging and affirming a student’s need to rest validates their experience and honors their embodiment of disability within an academic space. Such practices ensure that mentorship is not just inclusive in theory but empathetic and responsive in practice, thereby embodying the true spirit of crip mentorship.

Mental Health Check-Ins:

Mental health check-ins play a critical role in acknowledging the impact of mental health on academic performance. We incorporate regular check-ins that focus not only on progress but also on the well-being of mentees which promotes open discussion and destigmatization of mental health. These check-ins are vital for mentors to assist students in establishing a balance between academic responsibilities and personal life using time management strategies, realistic goals, and self-care.

The effectiveness of mental health check-ins in postsecondary education has been demonstrated in various innovative approaches. For instance, the first author has utilized creative strategies to engage students and effectively gauge their mental state including the use of Zoom polls featuring imaginative questions designed to prompt students to reflect and respond in a manner that resonates with them. An example of this is asking, ‘In what Mariah Carey mood are you today?’ with options like ‘A. Exhausted, darling’, ‘B. Hero – Feeling strong and resilient’, or ‘C. Fantasy – Cheerful and in high spirits’. This playful yet insightful approach encourages students to express their emotional state in a fun and relatable way.

Arts-based approaches provide another innovative avenue for mental health assessment. By asking students to create a comic strip encapsulating their feelings towards a particular topic allows them to communicate their emotional state visually and creatively. These artistic expressions offer unique insight into students’ perspectives and mental health, fostering a deeper understanding for the educator.

Peer Mentorship, Self-Advocacy, and Self-Efficacy:

Fostering opportunities for peer mentorship and self-advocacy is a key aspect of creating a supportive academic environment, especially for students with disabilities. The establishment of peer support networks alongside formal mentorship programs has lasting benefits. These interpersonal networks offer additional layers of support, enabling students to share their experiences and gain strategies for managing mental health. Peer mentorship among students fosters a sense of community and belonging rooted in understanding and shared experiences. Facilitating connections between students empowers mutual guidance and learning based on their experiential knowledge. Additionally, there exists a seemingly magical synergy when ‘crip’ and queer individuals come together. This natural gravitation towards one another fosters bonds that transcend traditional boundaries, celebrating the beauty and richness of diverse experiences. These connections enhance the academic experience, bringing unique perspectives and insights that enrich the learning environment for everyone.

Empowering self-efficacy is emulated in our mentorship, for example, by encouraging students to mobilize learning by presenting independently in conferences. The opportunity to take responsibility for bringing our shared work into the spotlight fosters network development, pride, and self-efficacy, translating to increased self-worth and confidence to self-advocate. Self-advocacy development in mentorship materializes by helping students build skills necessary to communicate their needs and seek appropriate accommodations independently which is essential for academic success and personal growth. Mentors and faculty must, however, to be prepared to advocate for students when needed. This duality of empowering self-advocacy while providing support ensures that students with disabilities are not only heard but are actively shaping their academic experiences. These practices provide students the opportunity to thrive.

Disrupting Academia Through Mentorship

In our collective endeavor to disrupt ableist norms in mentorship, adopting these concrete strategies is a pivotal starting point. As we navigate the dynamic and fast-paced terrain of academia, it is imperative to remember that the true strength of our academic community is rooted in its diversity. By embracing a crip mentorship approach, we pave the way for a more equitable and enriching educational experience for everyone.

For educators, a key suggestion is to actively educate themselves. Taking the initiative to learn about different disabilities and the range of available accommodations is crucial. This proactive approach demonstrates commitment and equips educators to better address the specific challenges faced by each student. Such knowledge and understanding are fundamental in creating an environment where all students can thrive.

Lastly, advocating for meaningful and inclusive policies is crucial in this journey. Pushing for improved accessibility, flexible academic policies, and increased funding for support services are essential steps in constructing a truly inclusive academic environment. These efforts are not just about disrupting the status quo; they are about cultivating an academic space where diversity is not just tolerated but celebrated, and where every individual’s potential is recognized and nurtured. Through these measures, we contribute to building a more inclusive, understanding, and supportive academic world.


Authors:

Cripping Mentorship- Image of Alan standing with his arms crossed and smiling. He is wearing a blue shirt with all kinds of bugs on it (grasshoppers, butterflies, dragonflies, etc), round glasses, and cap.

Dr. Alan Martino (He/Him) is an Assistant Professor in the Community Rehabilitation and Disability Studies program at the University of Calgary. He’s also the Lead of the Disability and Sexuality Lab. 

Cripping Mentorship- Naomi is sitting in a frozen ocean with ice skates, gloves, and hat on. She is smiling at the camera with a single side braid

Naomi Eastman is a graduate from the Community Rehabilitation and Disability Studies program at the University of Calgary. She actively works to translate knowledge into the disability community and has been published in the Palgrave Encyclopedia of Sexuality Education.

Cripping Mentorship- Image of Eleni. Eleni is standing in front of trees smiling with long brown hair and white shirt

Eleni Moumos (She/Her) is an undergraduate student studying Psychology with a minor in Community Rehabilitation and Disability Studies. Her research interests include mental health, disability, and sexuality.

Cripping Mentorship - Black and white image of Miila. She has shoulder length hair, nose ring, and glasses

Miila Gordon (She/Her) is a Bachelor of Community Rehabilitation student, minoring in Sociology at the University of Calgary. She is passionate about “cripping” academia, and all things regarding Queer and Women’s health initiatives for all folks.

Introduction to Disability Justice

by Ayesha Tariq

Image of Ayesha- she has long black hair and a blue top on smiling at the camera

What is disability justice? When I think about it, it makes sense, but I’m not sure it’s as clear for others. It makes me think about this conversation I had with a faculty member, Dr. R, at my school. There was some talk among students about other students who were getting additional time on exams. Many comments were negative, calling it ‘unfair.’ But I think it was really a lack of understanding. Though it seems the students receiving this accommodation of additional time had an advantage, they really didn’t. Dr. R put all of this in perspective for me. She said the student’s accommodations were really a way to ‘level the playing field, so to speak.’ The additional time would put the students at the same starting mark as the other students. This is what’s meant by equity. Equal is giving all the students the same exam. But equity is giving all the students the same means (or accommodations) to take the exam. This made perfect sense to me. 

That conversation gave me a glimpse of what disability justice stands for. To me it is giving the tools, resources, treatment to those who don’t have the access and who are treated unjustly. Disability justice stands for equitable and fair treatment. Because what’s justice if it only includes some but not all? Not to be corny, but doesn’t this country’s Pledge of Allegiance itself say, “One nation, indivisible, with liberty and justice for all.”1

The Oxford English Dictionary chronicles the definition of ‘disability’ over time starting from 1545 where disability was defined as the “lack of ability (to discharge any office or function); inability, incapacity; weakness.” 2 The word evolved over time opening doors to legal jargon. In 1571, disability was “a restriction framed to prevent any person or class of persons from sharing in duties or privileges which would otherwise be open to them; legal disqualification.” 2 Disability rights appeared in the OED in 1921, defined as “the human, civil, and legal rights belonging to disable people; spec. the rights of disabled people to be treated without discrimination and to enjoy equality of opportunity with abled people.” 2

It always baffles me when I think about how we can fight for something, win it, and then forget all about it. Isn’t that why history always repeats itself? Even the early uses of the word disability pointed to the discrimination going on at the time! If the definition existed during that time, then an event must’ve occurred to spark the definition into existence in the first place. And after all these centuries, we’re still fighting for rights for all including the disabled. 

If the concept of disability justice still isn’t clear, then read the different descriptions of disability justice below.

The Disability Activist Collective 2010 defines disability justice as,

“…the cross-disability (sensory, intellectual, mental health/psychiatric, neurodiversity, physical/mobility, learning, etc.) framework that values access, self-determination, and an expectation of difference. An expectation of difference means that we expect difference in disability, identity, and culture. To be included and part of society is about being able to be our “whole self” (all of our identities together). Disability Justice includes space for self-care, reflection, and hard discussions.”3

Disability justice attempts to secure rights for disabled people including those in marginalized communities such as people of color, immigrants, LGBTQIA+, homeless, incarcerated, ancestral lands stolen.4 Mia Mingus explains that disability justice does not mean that ‘everyone can and should be able to do everything on their own,’ which she calls the myth of independence. Instead, Mingus claims that “no one does it on their own” and points to interdependence being the key to fighting for disability justice and not independence.5 Similarly, Patty Berne highlights that the framework of disability justice understands “that all bodies are unique and essential” having strengths and needs. All bodies are bound in ways of “race, gender, sexuality, class, ability, nation state and imperialism” and cannot be unbound or separated.6

Disability justice has been around for longer than I knew. But despite it being around for a while, it seems many people aren’t aware of what it is. That each person deserves to be treated fairly, equitably, and with respect should be common knowledge, if not rudimentary knowledge. Having a disability of any kind shouldn’t exclude someone from having these basic rights. What perplexes me are those people who believe they should be excluded. 

I’m still learning about disability justice. And on this path of learning, I plan to bring awareness and advocate for disability justice.

Ayesha Tariq is a medical student at the University of California Riverside School of Medicine. She plans on pursuing psychiatry as her intended medical specialty. In addition to the required medical school curriculum, she is studying Medical Humanities and Health Humanities at the medical school and is currently a fellow of the Health Humanities and Disability Justice (Lab) at the University of California Riverside. Ayesha first became involved in healthcare justice after starting medical school where she learned from faculty about how deep health disparities are in medicine and academia, and then witnessing these health disparities and injustices firsthand while rotating in hospitals and clinics across the country in her third and fourth years of medical school.

References

  1. “The Pledge of Allegiance.” Historic Documents. April 1, 2024. https://www.ushistory.org/documents/pledge.htm
  2. ‘Disability’ etymology in the Oxford English Dictionary. Oxford University Press, 2023. https://www.oed.com/search/advanced/Meanings?textTermText0=disability&textTermOpt0=WordPhrase
  3. Ortiz, N. (2012, October 25). Disability Justice Framework. Disability Activist Collection 2010. https://disabilityj.blogspot.com/
  4. Hudson, H. (2021, September 8). Moving from Disability Rights to Disability Justice. World Institute on Disability. https://wid.org/moving-from-disability-rights-to-disability-justice/
  5. Resource Library, Disability and Philanthropy Forum. “What is Disability Justice?” https://disabilityphilanthropy.org/resource/what-is-disability-justice/
  6.  Berne, P. (2015, June 10). Disability Justice – a working draft by Patty Berne. https://www.sinsinvalid.org/blog/disability-justice-a-working-draft-by-patty-berne

Resources

Would you like to join our efforts in making a more inclusive world? 
The National Center for Disability, Equity, and Intersectionality has a broad range of opportunities and/or groups for you to join- from blogging with us to our Community of Practice to short-term committees that are focused on specific issues and topics. If interested, please feel free to reach out to Leah Smith @ Leah.Smith@cchmc.org.

What is Disability Justice? Facebook and Twitter logo. Text reads: Follow Us @ThinkEquitable

Intersectionality of Disability and Other Marginalized Identities

Reflecting on a Season of Impact and Looking Ahead: Our Journey at The National Center for Disability, Equity, and Intersectionality

As the year comes to an end, it is a time for reflection at the National Center for Disability, Equity, and Intersectionality. This fall has been a remarkable journey, filled with learning, sharing, and advocating. We’ve had the privilege of connecting with thousands of people across the country, amplifying our messages about the intersectionality of disability and other marginalized identities in healthcare, community settings, and justice systems.

Reaching Diverse Audiences

Intersecationality of Disability - Panel Presentation at AUCD- Leah Smith, Tracy Waller, Tyler Cochran, and Chris Hale-Mason- All with varying types of disabilities both visible and invisible.

Our team has been on the move, participating in influential conferences that have allowed us to engage with key stakeholders.

The HCBS conference planning committee invited our Associate Director, Leah Smith, to share about our Center’s work related to Home and Community Based Services with the nearly 1,500 attendees.

During the American Society of Bioethics and Humanities Conference in Baltimore, Maryland, with 1,200 attendees, the Center’s work on coercive sterilization and disability justice was presented as a flash talk and on the main stage.

In October, I joined a group of invite-only organization leaders in Washington, DC, to discuss the transition of disabled youth to adult healthcare, shining a light on the additional barriers faced by youth of color, LGBTQ youth, and girls, women, and young people who identify as female.

At the Association of University Centers on Disability in Washington, DC, we engaged with over 500 academic leaders and researchers to introduce our Center’s first year and present our work on police brutality experienced by disabled people, especially disabled people of color.

Our presence at the Association of Public Health Conference in Atlanta, Georgia, allowed us to intersect public health perspectives with our core mission, reaching over 12,000 public health professionals.

And finally, just last week, we attended the TASH conference with 2,000 attendees in Baltimore, Maryland, to present our work and network with professionals about the experiences, strengths, and needs of people with significant disabilities with multiple marginalized identities. 

Beyond conferences, we’ve delivered over a dozen guest lectures across various institutions, sharing our insights and broadening our understanding of diverse strengths, needs, and experiences within the disabled community through these invaluable interactions.

Advocacy Through Action

Intersectionality of Disability - Three disabled white women smiling at the camera, Kara Ayers, Leah Smith, and Katie Johnson

This year, our advocacy efforts were significant. We’ve actively responded to multiple calls for comments on crucial policies and decisions impacting disabled individuals. Our inclusive approach ensures the voices of disabled people are heard and integrated, staying true to our commitment as a center led by and for disabled individuals. Aligned with our commitment to inclusion, we’ve developed plain language summaries of the comments we submit. This ensures that more people can understand our work and join us in our advocacy. Most recently, we’ve shared plain language summaries for our comments on proposed 504 regulations and on proposed changes to the census. What other plain language resources would you like to see? Leave us a comment to let us know.

In 2024, we anticipate additional responses to calls for comments, as it is a highly effective form of advocacy. Our comments facilitate the representation of underrepresented perspectives. Our Center frequently amplifies these stories and experiences beyond just the comment itself. Through commenting, we can have a direct impact on policy while educating policymakers about the issues that matter most. With our comments, we’re creating a public record and along the way, empowering more people to engage in the advocacy processes. Making these processes as accessible and inclusive as possible is part of the work we do.

Energized for the Journey Ahead

Intersectionality of Disability- Blue background white text with quotes that reads: As we approach the new year, our resolve to champion equity only grows stronger

As we approach the new year, our resolve to champion equity only grows stronger. We’re excited to build on the momentum from the connections and knowledge gained this fall.

We invite you to join us in creating a more inclusive and just world – where disability, equity, and intersectionality are lived realities. Our work goes on, and we’re ready for the challenges and triumphs the new year will bring.