Addressing Current Gaps in the Provision of Prenatal Testing to Improve Patient Support and Present Disabilities More Equitably

Between June 6-June 8, 2021, the Prenatal Subcommittee of the Center for Dignity in Healthcare for People with Disabilities presented a poster about “Addressing Current Gaps in the Provision of Prenatal Testing to Improve Patient Support and Present Disabilities More Equitably” during the virtual gathering of the 25th International Conference on Prenatal Diagnosis and Therapy.
The poster was prepared by prenatal subcommittee members, Stephanie Meredith, Scotti Brackett, Nikki Watson, and Dr. Marsha Michie. Check out the poster below to learn more about the prenatal themes from the Gap Analysis:

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It is Time to Let Go of the QALY’s Legacy of Discrimination

Kelly Israel, Policy Analyst, Autistic Self Advocacy Network
Sara van Geertruyden, Executive Director, Partnership to Improve Patient Care

People with disabilities are consistently told they are too expensive to treat when compared to other groups. A metric of determining cost effectiveness of treatments and health services called the quality-adjusted life year (QALY) is yet another tool to make that argument on a larger scale. The QALY is often used to compare the benefits and costs of healthcare interventions. Cost effectiveness analyses based on the QALY are largely developed with intent for their use by insurers and payers to inform the treatments and services that may or may not be covered or subjected to utilization management practices. Advocates have long pushed for consideration of better metrics by payers that reflect the priorities of patients and people with disabilities, hoping to reduce hurdles to appropriate and timely care. As advocates work to understand how the concept of value is defined and used by states and health systems, it is imperative to understand why the QALY metric is discriminatory.  

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