For the Aging/End of Life Subcommittee, the gap analysis revealed that when it comes to aging and end of life for people with disabilities, inequities in healthcare exist with:
- Communication (multi-layered- doctor:patient, family:patient, family/patient-treatment team)
- Decision-making process is not supported or person-centered
- Complex family and social circumstances
- Cultural stigma and societal barriers related to talking about and planning for death with people with I/DD
- Unclear metrics to determine end of life
