Subcommittee on Aging/End of Life

For the Aging/End of Life Subcommittee, the gap analysis revealed that when it comes to aging and end of life for people with disabilities, inequities in healthcare exist with: 

  • Communication (multi-layered- doctor:patient, family:patient, family/patient-treatment team)
  • Decision-making process is not supported or person-centered
  • Complex family and social circumstances
  • Cultural stigma and societal barriers related to talking about and planning for death with people with I/DD
  • Unclear metrics to determine end of life
Health Equity Recommendations for People with Disabilities as They Age and Face End of Life. Center for Dignity in Healthcare for People with Disabilities