By: Johanne Mayer
When you speak directly to the patient, it shows the person that they are heard and that they matter. This is important in having respectful, inclusive care. Support people should definitely have a role, but they should not replace the patient’s voice unless, of course, the patient requests it or is unable to communicate.
Continue readingby Cassandra Brandt
I didn’t have anything to worry about with the threat of cuts to medicaid and my independence, they said. My need is legitimate. My disability is severe. I’m a C3-4 quadriplegic, paralyzed from the shoulders down. I rely on the social safety nets in place: Social Security Disability checks pay my bills and Medicaid and Medicare pick up my hefty healthcare tabs, frequent cab rides to appointments, and caregiver services that allow me to live independently. If these services are cut, so is my autonomy; I’ll be back in an understaffed institution.
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The National Center for Disability, Equity, and Intersectionality is funded by the Administration for Community Living through funding opportunity number 90NCDE0001-01-00. This website formerly included the work of the Center for Dignity in Healthcare for People with Disabilities.
