Tag: healthcare inequities

Caregiver Crisis for Disabled Individuals

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There is currently a huge caregiver crisis for disabled individuals in the U.S.

This firsthand account reflects a growing national conversation about the caregiver crisis for disabled individuals in the United States. A Psychology Today article (November 2023) emphasizes the increasing societal burden of adult caregiving, highlighting the emotional and financial stress placed on caregivers. In parallel, Harvard Health (May 2024) brings attention to the often-overlooked impact on caregiver well-being, noting that nearly 75% of caregivers are over the age of 50, and more than three-quarters are women—demographics particularly vulnerable to burnout and health complications. Tackling this crisis demands systemic reform: increased compensation, professional support for caregivers, and policies that invest in home and community-based services rather than defaulting to institutional care.

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Text: New Blog Post. "Time Lost to Disability Management is a Health Inequity.' by Annie Carver, Esq. Image of a clock with thousands of little clocks coming out of it. The National Center for Disability, Equity, and Intersectionality logo

Time Lost to Disability Management is a Health Inequity 

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by: Annie Carver, Esq. 

“Health inequities are difference in health status or the distribution of health resources between different populations or groups arising from the social condition in which people are born, grow, live, work, and age.” There are many health inequities that are associated with disability – caused by stigma, discrimination, poverty, exclusion from education and employment, and other barriers within the healthcare system. One health inequity that is rarely named for people with disabilities is lost time, or the time cost associated with being disabled. There is a time cost associated with navigating welfare and healthcare systems, coordinating medical care, and managing personal care and symptoms. On top of that, public inaccessibility and legal barriers isolate disabled people from their greater community; therefore, disabled people often have to navigate the complicated coordination of their care without the support system that many non-disabled people enjoy. These time barriers also tend to disproportionately impact those with multiply marginalized identities, particularly people of color and queer people. 

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