For the Organ Transplantation Subcommittee, the gap analysis provided us with evidence that there is systemic inequality for people with disabilities in receiving an organ transplant in the following ways:
- Early policy statements promoted awareness for increased donation but didn’t discuss candidacy
- Demand for transplantable solid organs far exceeds supply
- Patient selection criteria determined by individual programs with little transparency/oversight
- Estimates of quality of life are influenced by implicit and explicit bias
In an effort to address these inequities, the Organ Transplant Subcommittee has provided information for a Proposed Ruled by the Centers for Medicare & Medicaid Services. The group’s response can be found here: Health and Safety Requirements for Transplant Programs, Organ Procurement Organizations, and End Stage Renal Disease Facilities.
Organ Transplant Protections for People with Disabilities
In an effort to close these gaps, the Organ Transplant Subcommittee has also developed a set of recommendations that we hope will be utilized by all healthcare professionals involved in the organ transplant process.
Below, you can click on the image to the left for the recommendations for healthcare professionals. The image on the right is the easy read version of these recommendations.
