Text: New Blog Post. "Time Lost to Disability Management is a Health Inequity.' by Annie Carver, Esq. Image of a clock with thousands of little clocks coming out of it. The National Center for Disability, Equity, and Intersectionality logo

Time Lost to Disability Management is a Health Inequity 

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by: Annie Carver, Esq. 

“Health inequities are difference in health status or the distribution of health resources between different populations or groups arising from the social condition in which people are born, grow, live, work, and age.” There are many health inequities that are associated with disability – caused by stigma, discrimination, poverty, exclusion from education and employment, and other barriers within the healthcare system. One health inequity that is rarely named for people with disabilities is lost time, or the time cost associated with being disabled. There is a time cost associated with navigating welfare and healthcare systems, coordinating medical care, and managing personal care and symptoms. On top of that, public inaccessibility and legal barriers isolate disabled people from their greater community; therefore, disabled people often have to navigate the complicated coordination of their care without the support system that many non-disabled people enjoy. These time barriers also tend to disproportionately impact those with multiply marginalized identities, particularly people of color and queer people. 

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Text: The Paradoxical Perspective on Paxlovid Purple Background with The National Center for Disability, Equity, and Intersectionality logo

The Paradoxical Perspective on Paxlovid

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By Tracy Waller, Esq., MPH

“If it’s COVID, Paxlovid.” Or is it? Pfizer launched its most recent commercial for Paxlovid in February 2023 and has gone full throttle into its advertisement of the drug. Pfizer first received Emergency Use Authorization (“EUA”) for Paxlovid in December 2021 and then received a revised EUA in February 2023. The commercial touts the drug as a “miracle” drug of sorts. On November 6, 2022, the Office of Veterans Affairs released a study showing that Paxlovid can reduce the risk of symptoms of long COVID. Pfizer includes in its commercial for the drug, as required, that certain classes of people are excluded from taking Paxlovid based on negative drug interactions; however, the gravity of the number of people who are ineligible to take the drug is not readily apparent and leaves large swaths of the United States’ (“US”) and global populations without access to this life-saving drug. The lack of access to Paxlovid for the people most vulnerable to COVID-19- the elderly, people with disabilities, and other immunocompromised people – emphasizes the need for pharmaceutical companies to focus on developing treatment options that meet the needs of so many of those left behind.

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Community of Practice- About Us

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The National Center for Disability, Equity, and Intersectionality. An Administration for Community Living Project of National Significance. Text included below image

The National Center for Disability, Equity, and Intersectionality

Who We Are
We are a group of people with disabilities, family members of people with disabilities, professionals, and collaborators committed to learning and teaching about the interests, needs, and wants of people with marginalized identities and lived experiences of disabilities. Five partner organizations founded our Center.

What We Do
The National Center for Disability, Equity, and Intersectionality identifies and works together to reduce inequities in healthcare, community living, and justice for people with disabilities. The Center: (1) amplifies the voices of people with disabilities, (2) creates materials to impact positive change, and (2) shares information with people with disabilities, their families, their communities, and policymakers.

How We Work
We convene a Community of Practice (CoP), which is a group of people collaborating to dismantle systems of ableism, racism, cisgenderism, and other forms of oppression. The Community of Practice will meet monthly and may work between some meetings to develop resources and tools. The Center is also home to the Changemakers Coalition, which supports the diversity of youth with disabilities working for a more equitable future.

How Can You Join
If you are interested in joining the CoP, e-mail Leah Smith at leah.smith@cchmc.org. To find out more about the Center, visit our website and follow us on Twitter and Facebook.