Prenatal Diagnosis Subcommittee

Our gap analysis verified that in utero, the diagnosis of disability produces discriminatory practices for expectant parents. Genetic testing and prenatal diagnosis are now routine and offered to all pregnant people, rather than just those in the high-risk category. Potential parents are often given medicalized “worst case scenario” information when presented with a prenatal diagnosis of disability and rarely any positive information about how people with disabilities and their families can and do thrive.

In an effort to close these gaps, the Prenatal Diagnosis Subcommittee has developed a set of recommendations that we hope will be utilized by healthcare professionals involved in prenatal diagnosis.
Below, you can click on the image to the left for the recommendations for healthcare professionals. The image on the right is the easy read version of these recommendations. Another version of these recommendations were also published in the Disability and Health Journal.

Easy Read Version- Recommendations for Stakeholders to Reduce Discrimination Against People with Disabilities in the Administration of Prenatal Screening/ Testing. September 2022. Center for Dignity in Healthcare for People with Disabilities logo. Text on yellow background with a purple border
Image of a sonogram and pregnancy test in the background with blue box with text on top of it. Text reads: Recommendations for Stakeholders to Reduce Discrimination Against People with Disabilities in the Administration of Prenatal Screening/Testing