Tag: People with Disabilities

To Disclose or Not to Disclose. by Chris Mason-Hale, BSW

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Update: This blog was featured on NPR’s “On The Record” Podcast. Listen to it here

Disclosing Disability Disclaimer: The writer of this blog identifies as a quadriplegic operating a manual wheelchair. The contents of this blog are an opinion of the writer based on their lived experience and several years as a peer mentor for people with disabilities and not meant to omit the experiences of other people with disabilities.

Online dating has made romance – or at least meeting people – more accessible than ever. Dating sites give people with disabilities a platform to maybe find that “someone special.” Many people form meaningful relationships–some local and some long distance. For those with disabilities, dating apps can be a remedy for the isolation brought on by barriers, such as limited transportation options and the COVID-19 pandemic, which have made it difficult to meet new people. It also provides an opportunity to disclose your disability on your terms. However, whether you’re swiping left, being left on read without a response, or swimming in dating matches, online dating is a heart-pounding experience…just not always in a good way. For those with disabilities, the worry that their disability will be too much for a potential partner is often very real. Which begs the question, “To disclose or not to disclose?”–But is that the right question?

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Text: New Blog Post. "Time Lost to Disability Management is a Health Inequity.' by Annie Carver, Esq. Image of a clock with thousands of little clocks coming out of it. The National Center for Disability, Equity, and Intersectionality logo

Time Lost to Disability Management is a Health Inequity 

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by: Annie Carver, Esq. 

“Health inequities are difference in health status or the distribution of health resources between different populations or groups arising from the social condition in which people are born, grow, live, work, and age.” There are many health inequities that are associated with disability – caused by stigma, discrimination, poverty, exclusion from education and employment, and other barriers within the healthcare system. One health inequity that is rarely named for people with disabilities is lost time, or the time cost associated with being disabled. There is a time cost associated with navigating welfare and healthcare systems, coordinating medical care, and managing personal care and symptoms. On top of that, public inaccessibility and legal barriers isolate disabled people from their greater community; therefore, disabled people often have to navigate the complicated coordination of their care without the support system that many non-disabled people enjoy. These time barriers also tend to disproportionately impact those with multiply marginalized identities, particularly people of color and queer people. 

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Text: The Paradoxical Perspective on Paxlovid Purple Background with The National Center for Disability, Equity, and Intersectionality logo

The Paradoxical Perspective on Paxlovid

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By Tracy Waller, Esq., MPH

“If it’s COVID, Paxlovid.” Or is it? Pfizer launched its most recent commercial for Paxlovid in February 2023 and has gone full throttle into its advertisement of the drug. Pfizer first received Emergency Use Authorization (“EUA”) for Paxlovid in December 2021 and then received a revised EUA in February 2023. The commercial touts the drug as a “miracle” drug of sorts. On November 6, 2022, the Office of Veterans Affairs released a study showing that Paxlovid can reduce the risk of symptoms of long COVID. Pfizer includes in its commercial for the drug, as required, that certain classes of people are excluded from taking Paxlovid based on negative drug interactions; however, the gravity of the number of people who are ineligible to take the drug is not readily apparent and leaves large swaths of the United States’ (“US”) and global populations without access to this life-saving drug. The lack of access to Paxlovid for the people most vulnerable to COVID-19- the elderly, people with disabilities, and other immunocompromised people – emphasizes the need for pharmaceutical companies to focus on developing treatment options that meet the needs of so many of those left behind.

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